Canadian Rare Disease Network Manager, Medical Genetics

We want to take this chance to acknowledge the normal territories of the individuals of the Treaty 7 area in Southern Alberta. The Metropolis of Calgary can also be residence to Métis Nation of Alberta, Districts 5 and 6.

Place Overview

The Division of Medical Genetics within the Cumming College of Drugs invitations functions for a Canadian Uncommon Illness Community Supervisor. This Full-time Mounted Time period place is for about 1 yr (based mostly on size of grant funding), with the potential of extension.

CRDN Supervisor to information and help the event and implementation of the Canadian Uncommon Illness Community (CRDN), a pioneering initiative that may deliver Canada to the forefront as a world chief in uncommon illness analysis, care, and innovation.

Reporting to the Chair of the CRDN and dealing collaboratively with the Steering Committee, Working Teams and a number of high-level stakeholders in academia, healthcare, the neighborhood, authorities our bodies, and trade throughout Canada and past, this place will likely be liable for planning, co-development, implementation, and administration of the CRDN. This position will convene and help cross-sectoral and multi-provincial/territorial teams to develop methods, processes, and procedures for this collaborative, digital community that accelerates scientific discoveries, enhances affected person care, fosters collaboration and information change, and drives innovation for youngsters and adults affected by advanced and uncommon illnesses.

Extra time could also be required every now and then. Occasional provincial, nationwide, and worldwide journey could also be required.

Place Description

Abstract of Key Obligations (job capabilities embrace however are usually not restricted to):

Community Improvement and Administration

• Develop and implement the CRDN which is able to act as a digital community and hub by linking present uncommon illness sources and initiatives throughout the nation in a uniquely collaborative effort
• Develop and talk a transparent strategic imaginative and prescient and mission for the CDRN in session with the Steering Committee
• Answerable for the event and updating of the networks strategic plan to align the capabilities, wants and shared goals of the uncommon illness neighborhood throughout Canada
• Makes selections that require creating new choices to resolve advanced issues
• Facilitate stakeholder engagement and strategic precedence/route setting
• Information and lead the event and implementation of the community’s infrastructure and initiatives to drive its targets
• Handle and safe sources and funding by grants and partnerships to help the community’s operations and initiatives
• Lead and collaborate within the growth of novel concepts related to progress and sustainment of the community

Coordination and Collaboration

• Construct and nurture relationships with uncommon illness stakeholders in academia, healthcare, affected person advocacy teams, authorities and trade in Canada and past
• Discover alternatives for worldwide collaboration with uncommon illness organizations in different international locations to share information and greatest practices
• Facilitate efficient communication and foster collaboration amongst various uncommon illness stakeholders to drive collective efforts
• Symbolize the CRDN at related conferences, conferences, and trade occasions to boost its scope and affect and keep knowledgeable in regards to the newest developments and alternatives
• Act as a convener and enabler to attach the uncommon illness neighborhood throughout sectors and produce out a unified voice
• Guarantee excessive diploma of confidentiality and integrity, display discretion, professionalism and good judgement in coping with confidential data

Communication and Outreach

• Develop and execute communication methods and supplies to boost consciousness about uncommon illnesses and CRDN’s work
• Have interaction with the general public, sufferers, caregivers, healthcare professionals, researchers, trade leaders, authorities, and the media to advertise the group’s mission
• Manage and take part in neighborhood engagement occasions, corresponding to group gatherings and uncommon illness consciousness campaigns

{Qualifications} / Necessities:

• Bachelors Diploma; superior diploma most popular (Grasp or PhD stage), ideally in a health-related self-discipline (e.g., healthcare administration, public well being, life sciences or associated self-discipline)
• Earlier management and administration expertise, together with setting strategic targets, organizational administration, engagement of multi-site, cross-functional and cross-sectoral stakeholders, and sustainability planning
• Sturdy challenge administration and organizational abilities required (PMP thought-about an asset), with the power to deal with a number of duties and timelines
• Should possess wonderful interpersonal and communication abilities, with the power to work together with healthcare professionals, researchers, affected person and household representatives and/or affected person advocacy teams, policymakers, and trade leaders to foster collaboration and partnerships
• Confirmed means to develop inside and exterior collaborations and powerful cultural competence
• Glorious analysis and technical writing abilities with means to jot down inside operational paperwork required
• A sound understanding of educational analysis or healthcare programs and operations
• Experience in grant writing and fundraising methods required
• Expertise gathering, managing, and analyzing information to judge community efficiency and outcomes and optimize processes required
• Expertise in public relations, advertising and/or the not-for-profit setting thought-about an asset
• Regulatory information, together with rules associated to uncommon illness analysis, affected person privateness (e.g., HIPAA) or scientific trials (e.g., Good Medical Apply) thought-about an asset
• Capability to remain up to date on developments as they relate to uncommon illnesses and drive innovation inside the community is crucial
• Sturdy problem-solving abilities, adaptability, and a spotlight to element 

Software Deadline: November 24, 2023

We want to thank all candidates upfront for submitting their resumes. Please word, solely these candidates chosen to proceed on by the choice course of will likely be contacted.

Further Data

This place is assessed within the Analysis Profession Band, Degree 4 of the Administration and Skilled Workers Profession Framework. 

To seek out out extra about administration and employees alternatives on the College of Calgary and all we’ve to supply, view our Administration and Workers Careers web site . For extra data go to Careers within the Cumming College of Drugs .

The College strongly recommends all college and employees are absolutely vaccinated in opposition to COVID-19.

In regards to the College of Calgary

The College of Calgary is Canada’s main next-generation college – a dwelling, rising and youthful establishment that embraces change and alternative with a can-do perspective. Situated within the nation’s most enterprising metropolis, the college is making large progress on its Eyes Excessive journey to be acknowledged as one in all Canada’s prime 5 analysis universities, grounded in progressive studying and instructing and absolutely built-in with the neighborhood it each serves and leads. The College of Calgary evokes and helps discovery, creativity and innovation throughout all disciplines. For extra data, go to ucalgary.ca .

The College of Calgary has launched an institution-wide Indigenous Technique in step with the foundational targets of Eyes Excessive , committing to making a wealthy, vibrant, and culturally competent campus that welcomes and helps Indigenous Peoples, encourages Indigenous neighborhood partnerships, is inclusive of Indigenous views in all that we do.

As an equitable and inclusive employer, the College of Calgary acknowledges {that a} various employees/college advantages and enriches the work, studying and analysis experiences of the whole campus and better neighborhood. We’re dedicated to eradicating obstacles which have been traditionally encountered by some individuals in our society. We try to recruit people who will additional improve our variety and can help their tutorial {and professional} success whereas they’re right here. Specifically, we encourage members of the designated teams (girls, Indigenous peoples, individuals with disabilities, members of seen/racialized minorities, and various sexual orientation and gender identities) to use. To make sure a good and equitable evaluation, we provide lodging at any stage in the course of the recruitment course of to candidates with disabilities. Questions concerning [diversity] EDI at UCalgary might be despatched to the Workplace of Fairness, Range and Inclusion ([email protected] ) and requests for lodging might be despatched to Human Sources ([email protected] ).

Do you’ve most however not all of the {qualifications}? Analysis present that girls, racialized and visual minorities , and individuals with disabilities are much less prone to apply for jobs until they meet each single qualification. At UCalgary we’re dedicated to attaining equitable, various, inclusive and accessible employment practices and workplaces and encourage you to use when you consider you’re proper for this position. 

We encourage all certified candidates to use, nevertheless choice will likely be given to Canadian residents and everlasting residents of Canada.